1. 1. Bobillo-Perez S, Segura S, Girona-Alarcon M, Felipe A, Balaguer M, Hernandez-Platero L, et al. End-of-life care in a pediatric intensive care unit: the impact of the development of a palliative care unit. BMC Palliative Care. 2020;19(1):74.
2. Nourmohammadi J, Behroozfar H, Mahmoodi S, Rajabiniat F, Sadeghi N, Nourmohammadi Z. The Impact of Drug on Heart Problems in Children with a Family-Centered Care Approach. Journal of Medicinal and Chemical Sciences. 2021;4(6):660-75.
3. Kav S, Brant JM, Mushani T, editors. Perspectives in international palliative care. Seminars in Oncology Nursing; 2018: Elsevier.
4. Lu Y, Gu Y, Yu W. Hospice and palliative care in China: development and challenges. Asia-Pacific journal of oncology nursing. 2018;5(1):26-32.
5. Basu RK. End-of-Life Care in Pediatrics: Ethics, Controversies, and Optimizing the Quality of Death. Pediatric Clinics of North America. 2013;60(3):725-39.
6. Mancini A, Uthaya S, Beardsley C, Wood D, Modi N. Practical guidance for the management of palliative care on neonatal units. London: Royal College of Paediatrics and Child Health. 2014.
7. Larcher V, Craig F, Bhogal K, Wilkinson D, Brierley J. Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Archives of disease in childhood. 2015;100(Suppl 2):s1-s23.
8. Lizotte M-H, Latraverse V, Moussa A, Lachance C, Barrington K, Janvier A. Trainee perspectives on manikin death during mock codes. Pediatrics. 2015;136(1):e93-e8.
9. Dryden-Palmer K, Haut C, Murphy S, Moloney-Harmon P. Logistics of withdrawal of life-sustaining therapies in PICU. Pediatric Critical Care Medicine. 2018;19(8S):S19-S25.
10. Amery J. Mapping children's palliative care around the world: an online survey of children's palliative care services and professionals' educational needs. Journal of Palliative Medicine. 2012;15(6):646-52.
11. Feudtner C, Womer J, Augustin R, Remke S, Wolfe J, Friebert S, et al. Pediatric palliative care programs in children’s hospitals: a cross-sectional national survey. Pediatrics. 2013;132(6):1063-70.
12. Vollenbroich R, Duroux A, Grasser M, Brandstätter M, Borasio GD, Führer M. Effectiveness of a pediatric palliative home care team as experienced by parents and health care professionals. Journal of palliative medicine. 2012;15(3):294-300.
13. Zimmermann K, Cignacco E, Eskola K, Engberg S, Ramelet AS, Von der Weid N, et al. Development and initial validation of the Parental PELICAN Questionnaire (Pa PEQ u)–an instrument to assess parental experiences and needs during their child's end‐of‐life care. Journal of Advanced Nursing. 2015;71(12):3006-17.
14. Aschenbrenner AP, Winters JM, Belknap RA. Integrative review: parent perspectives on care of their child at the end of life. Journal of pediatric nursing. 2012;27(5):514-22.
15. Melin-Johansson C, Axelsson I, Grundberg MJ, Hallqvist F. When a child dies: parents' experiences of palliative care—an integrative literature review. Journal of Pediatric Nursing. 2014;29(6):660-9.
16. Jensen J, Weng C, Spraker-Perlman HL. A provider-based survey to assess bereavement care knowledge, attitudes, and practices in pediatric oncologists. Journal of Palliative Medicine. 2017;20(3):266-72.
17. Wiener L, Rosenberg AR, Lichtenthal WG, Tager J, Weaver MS. Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings. Palliative & supportive care. 2018;16(6):706-11.
18. Coelho A, de Brito M, Teixeira P, Frade P, Barros L, Barbosa A. Family caregivers’ anticipatory grief: A conceptual framework for understanding its multiple challenges. Qualitative health research. 2020;30(5): 693-703.
19. Garach-Gómez A, Ruiz-Hernández A, García-Lara GM, Jiménez-Castillo I, Ibáñez-Godoy I, Expósito-Ruiz M, editors. Promoción de la lectura en etapas precoces desde atención primaria en una zona de exclusión social. Anales de Pediatría; 2021: Elsevier.
20. Kars MC, Grypdonck MH, de Korte-Verhoef MC, Kamps WA, Meijer-van den Bergh EM, Verkerk MA, et al. Parental experience at the end-of-life in children with cancer:‘preservation’and ‘letting go’in relation to loss. Supportive Care in Cancer. 2011;19(1):27-35.
21. Foster TL, Dietrich MS, Friedman DL, Gordon JE, Gilmer MJ. National survey of children's hospitals on legacy-making activities. Journal of palliative medicine. 2012;15(5):573-8.
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